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Archive for April, 2014

Here we go again…

Sue goes into hospital tomorrow.
She has been in terrible pain. Morphine doesn’t help.
It feels like a band is hard around gopher stomach.
She has been virtually unable to eat – 2 teaspoons of rice and half a cup of broth is a huge meal.
She was losing weight at the rate of half a kilo a day.
That stopped, swelling in her gut started and the pain got much worse.
Tomorrow they will operate to try and ‘suck out the goop’ from her gut, in an effort to relieve the pressure and give her some quality of life.
It turns out that the Hospice doctors are far more pro-active in terms of on going treatment than the oncologist was.
We met her surgeon on Friday – he is a long, tall, geeky-nerdy chap whom I would follow to the ends of the Earth. He is immensely kind and optimistic.
He loves these types of cases – as does her Hospice doctor.
They have been wonderful, but we are frightened of her having to spend time at the hospital as she will be back in the ward she had such mixed treatment from back at the beginning of all this.
Of course, this time around we are much more aware of the need to advocate for her. And I will. Quietly, but very firmly if necessary.
She is very, very unwell.
And yet determined to fight.
I have been cleaning like a demon. It doesn’t help her, but it gives me something to do and passes the time.
On another note:
I have been completely unable to comment on your blogs. I try, and the interwebs swallow my comment whole. Please know that I check in with you each day and long to be in touch. You are very important to me and have kept me sane throughout this thing.
Thank you XO

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